Children’s medicines – how listening to parents led to safer care

Children’s medicines – how listening to parents led to safer care featured image
2015-08-22_55d85f12f413a_iStock_000009289937Medium.jpgBackground: From 2008 to 2014 my company ran education sessions on managing medicines in a mental health trust. In common with some other mental health trusts the provider also looked after paediatric community services. This is not a mental health service. It covers children with complex health needs including enteral feeding tubes, ventilation; epilepsy and rapidly changing medicines. Children under the care of this service may be taking in excess of 15 different medicines per day, have complex titration regimes, emergency drugs with associated care plans, plus numerous ‘as required’ (prn) medicines.

It is not unusual for children with complex conditions to be under the care of up to five different providers, and to move between three different providers in one day. For example, from a Home Care Service to the Special School, to a Short Break House, maybe also being seen in an Outpatient Clinic on the same day too. As a result parents frequently have to repeat the information on their child’s medicines every time they move to another service, or a new person is involved.

Where to start? We looked at the whole system starting with the area where most concerns had been raised, which was having an up to date complete list of a child’s medicines available at all times (medicines reconciliation). The system in place for Short Break Houses involved paying a local GP (not usually from the child’s GP Practice) to write up a medicines chart for each child. The process was fraught with difficulties and delays and widely disliked by everyone directly involved.

So we set about looking for a new way to manage the lists of medicines with more training and more input for the staff in the services involved. We came up with a new (and much more robust) process for medicines reconciliation in the Short Break Houses. This was fully documented in a new policy, and involved cross checking by both the staff and the parents.

Just before this went live, we asked the parents to review and comment on it and they said ‘If you’re producing an accurate and up-to-date list of my child’s medicines, why keep it the Short Break House, can’t it go with my child?’ So the My Medicines chart, which travels with the child, was born.

What was involved? The My Medicines process led to the design and production of a new chart which has to be signed and checked by the parents. It resulted in 40 children with complex conditions being offered a hand held paper record of their medicines (produced and validated by clinicians), which they take around with them wherever they go.

Benefits: The new process, which continues to evolve, means that the child’s GP is now directly involved in day to day medicines reconciliation (they weren’t before); the parents are always asked to check and sign the charts (they weren’t before); verbal messages about medicines are never taken, and incomplete (or missing) directions are rapidly rectified (never worked around).

Some specific benefits of the new process include:

• It has reduced the risks of error, by providing full and accurate information on children’s medicine across their entire pathway.

• It cuts out the need for parents to keep having to repeat what medicines their child is taking to different professionals and care agencies.

• It frees up medical and clinical time which was previously spent chasing missing information.

• It has reduced the number of third part handovers and transcribing of prescription information.

There is a longer version of this work here

And more  background here
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