John’s Campaign is so simple that it shouldn’t be a campaign — it should be an automatic accepted practice and that’s what we want to see.

When people with dementia are admitted to hospital they need extra care — everyone knows that. Many hospitals are already thinking hard about ways they can become more dementia-friendly and this is great (not just for people with dementia).

John’s Campaign states that if the carers of people with dementia are able and willing to spend time with them in hospital they should be welcomed and cherished. Visiting hours should not apply. If the patient needs their carer at mealtimes, all day or overnight and if the carer is willing to give this wonderful, free, person-centred support the hospital staff should be delighted.

Clinicians working in partnership with carers give each patient his or her best chance to maintain well-being though the hospital experience, stay safe and go home soon. John’s Campaign has been running for a year, evaluations are good and almost 200 hospitals (or wards within hospitals) have already pledged to welcome carers whenever the patient needs them.

We think this should be everywhere — it should be as embedded as the welcome given to parents of sick children. And not only for dementia patients: anyone who depends on another person’s support to cope with life outside hospital will still need that support when they are inside. It’s simple commonsense and kindness.

Please, ALL hospitals, hang out those welcome signs for carers. To join John’s Campaign email [email protected] with a 50 word statement to be added to the Observer list of hospitals who welcome carers.

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  1. lynne.watson
    lynne.watson 9 December 2015 at 8:22 am

    This is just so ….’goes without saying’, after all on paediatric and adolescent wards/areas it is accepted (even EXPECTED) that parents should be involved in providing care for their child/young person (on the understanding they accept this). We would never go back to a time when parents are restricted to ‘visiting hours’ and not involved in caring for their son/daughter so why should we expect the reverse – son/daughter/carer being involved in the care of their parent/aunt/uncle/family member – to be any different? This is just such common sense and well done for raising it.

  2. Johns Campaign 10 December 2015 at 7:19 pm

    Thank you so much Lynne. We try to avoid the “expected” bit as carers are often older and more tired, with less opportunity for respite than parents but the analogy is a real one and I simply couldn’t bear the thought of my 91 year old mother being expected to cope in hospital without me. In so many ways she is LESS capable than a child. It is common sense I long for the day we can stop campaigning for it!

  3. lynne.watson
    lynne.watson 11 December 2015 at 9:59 am

    I so agree – my 89 year is also so less capable and our relationship is so very different. You are so right in saying that carer’s need to be supported in continuing their role in hospital rather than being dictated to that they can only visit during such a such time. ‘Family meals time’ could be so resource saving with carers helping their relative to eat thereby saving a nurse/HCA from ‘feeding’ patients. A dreadful memory from my training days when nurse would feed patients. If my mother was an inpatient I would want to share a meal with her. Just keep campaigning .. please 🙂

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